![]() "When they opened his eyelids to do an eye examination, there was darkness underneath," said Javed, adding that after genetic testing and an MRI, the cause of Jordy's anophthalmia is still unknown.Ī day after the elation of giving birth, Brania Jackson wept in her hospital bed after learning her son would never see.Īnophthalmia affects around 1 to 3 in 100,000 live births internationally, though experts say these estimates are very rough. They didn't pick up on the abnormality until he was taken to the nursery and they realized it was difficult to pry open his eyes, Javed said. The physicians and nurses initially thought the newborn just wasn't ready to open his eyes. He never thought to lift the baby's eyelids. ![]() ![]() Kyle Jackson said he was awestruck as he held his son for the first time, looking over every part of his 18 inches and counting all the fingers and toes. Brania Jackson said the 5-pound, 5-ounce baby never cried or opened his eyes, but she didn't think anything of it. Jawad Javed, the neonatologist who treated Jordy. Because the eyes are such a small part of the body and mainly comprised of water, anophthalmia isn't usually detected through a typical fetal ultrasound, said Dr. They said there was never a hint of any defect. Giles was initially disappointed: She wanted this for her daughter, just much later in her life.ĭespite these mixed emotions, the grandmother and parents-to-be were excited as they watched the fetus grow in a series of three ultrasounds. When morning sickness hit, she said she felt scared and overwhelmed at the prospect of unexpected motherhood. But the baby's eyelids never opened.īrania Jackson has been dating Kyle Jackson - now a freshman at Robert Morris University in Peoria - for about two years, ever since they met at the concession stand of a football game between their rival high schools. His head tilted slightly in the direction of his mother's soft voice and the deep baritone of his father, sitting beside them. When he awakened hungry for a bottle, he balled his little fists, and tiny tears streamed down his cheeks. The 3-month-old has no ocular tissue, optic nerve or any vestige of an eye on either side, according to a neonatologist who treated him. Jordy looked like any other infant as he slept cradled in his mother's arms, but beneath his deep eyelids is just smooth, glossy flesh.
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